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RARE News
RARE News
Myhre Syndrome Foundation awards $150,000 in grants
By admin
3 March 2022
RARE News
Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment
By admin
2 March 2022
RARE News
THE TAPS SUPPORT FOUNDATION
By admin
28 February 2022
RARE News
Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community
By admin
15 February 2022
RARE News
The Neuromuscular Disease Foundation Takes the Lead
By admin
4 February 2022
RARE News
The urgent case for patient assistance funding
By admin
3 February 2022
RARE News
NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits
By admin
20 January 2022
RARE News
RARE Revolution promotions announcement
By admin
7 January 2022
RARE News
Rare disease clinic for Poland Syndrome
By admin
21 December 2021
RARE News
Foundation of the RE(ACT) Discovery Institute
By admin
14 December 2021
RARE News
Sickle Cell Disease Association of America names Regina Hartfield CEO
By admin
10 December 2021
RARE News
Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.
By admin
9 November 2021
RARE News
What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma
By admin
30 October 2021
RARE News
Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting
By admin
26 October 2021
RARE News
Research Tools Matching Grant Program now accepting applications!
By admin
25 October 2021
RARE News
BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome
By admin
25 September 2021
RARE News
Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’
By admin
14 September 2021
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