Turning the tide for rare disease

The power of the patient voice in rare disease research

By CONTRIBUTOR

12 March 2025

RARE News

Butterfly mural symbolising rare endocrine condition unveiled at key Harrogate conference

By CONTRIBUTOR

11 March 2025

Rare insights

Living Rare in your twenties

By CONTRIBUTOR

10 March 2025

Charity & advocacy

“Lil’ Brave One” from Serbia: Empowering scientific and patient networks in the field of rare neurotransmitter disorders

By CONTRIBUTOR

5 March 2025

Science & tech

The inflection era of healthcare: where technology, data, AI, and collaboration converge

By CONTRIBUTOR

24 February 2025

Rare insights

The Gap in access to rare disease treatments for low-middle-income countries

By CONTRIBUTOR

20 February 2025

Industry Insights

Patient-led research in rare diseases: How can we make this a reality?

By CONTRIBUTOR

20 February 2025

Science & tech

Enhancing clinical trial success through proactive patient advocacy and engagement

By CONTRIBUTOR

19 February 2025

RARE News

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR

12 February 2025

Turning the tide for rare disease

The transatlantic partnership advancing breakthrough science into innovative treatments for rare diseases

By CONTRIBUTOR

5 February 2025

RARE REV-inar

A blueprint to advance genomic medicine in Latin America

By CONTRIBUTOR

29 January 2025

RARE News

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR

28 January 2025

RARE News

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR

28 January 2025

RARE caregiving

Considering caregiver value at JP Morgan

By CONTRIBUTOR

22 January 2025

Turning the tide for rare disease

Blood Sword by the Duncan Brothers: A mythical sword-wielding comedy to raise awareness of an underdiagnosed genetic condition

By CONTRIBUTOR

8 January 2025

Patient voice

“Having SDS shouldn’t hold you back, it shouldn’t define who you are.”

By CONTRIBUTOR

18 December 2024

Industry Insights

Looking backwards, looking forwards

By CONTRIBUTOR

11 December 2024