About

Nicola Miller, RARE Revolution

RARE Revolution

Nicola is our uber creative co-founder and editor-in-chief. With a strong background in design and a passion for writing, Nicola is the driving force behind our creative vision, and uses her strategic experience in large-scale project planning to oversee our varied work, including RARE Youth Revolution. Nicola is co-founder and trustee of the charity Action for XP, volunteering her time to drive forward their mission—supporting families living with the ultra-rare condition xeroderma pigmentosum. Nicola is also author of the award-winning rare disease children’s book series, Little Ted. When not dedicating her time to rare disease, she is raising her two gorgeous sons, and is a rare mama herself.