Celebrating Rare Disease Day 2025!

This special edition explores how we can all play a role in striving to be radically authentic. Whether that is through our approach to AI, our use of language or in the tone of the stories we tell—we each have a responsibility in shaping the narrative and driving change 

We are delighted to launch our flagship, special Rare Disease Day 2025 edition—proudly supported by HAVAS Life London. This edition provides community insights and industry thought leadership on what it takes to be radically authentic and what that means in the context of rare diseases. 
 

Featuring:

• why is being authentic so important in rare—Sarak Mikhailov, HAVAS Life London
• advocacy across borders—Sarah Wynn, CEO, Unique and Odette Schwegler, executive director, Tin Soldiers Global
• utilising technology and AI—Dimitri Challouma, HAVAS Life London
• met me in my world, talk to me in my language with community insights from Nadiah Hanim Abdul Latif, Malaysian Rare Disorders Society, and Dr Kristen Johnson, president, Fragile X International
• meaningful data generation—Jaineel Mistry, Archipelago and Matt O’Hara, Trinity Life Sciences
• understanding the HCP experience—Gemma McCarthy, HAVAS Life London
• plus; discussing creativity as a tool, navigating transition, and the next emerging initiatives and innovations on the horizon. With community insights from Unique, Tin Soldiers, Childhood Tumour Trust and more 

You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. And don’t forget you can also view from our website at any time along with lots of other great digital content.

www.rarerevolutionmagazine.com 

We hope you enjoy this edition and however you are marking Rare Disease Day 2025, we hope you are striving to embody this year’s theme by being ‘more than you can imagine’.

Thank you for supporting our RARE Revolution.
Together we are turning the tide for rare disease,


Warmest regards,

The RARE Rev Team
RARE Revolution Magazine

https://bit.ly/RDD2025-RadicallyAuthentic