NephCure, a leading non-profit organisation dedicated to improving the lives of people affected by rare kidney diseases, is proud to recognise IgA Nephropathy (IgAN) Awareness Day on May 14, 2025. This important day is dedicated to elevating awareness of IgA Nephropathy, a rare kidney disease that often progresses without obvious symptoms until significant damage to the kidney has occurred.

NephCure remains committed to empowering patients, caregivers, and healthcare professionals with resources, education, and support to help improve outcomes for those impacted by this condition.

Also known as Berger’s disease, IgA Nephropathy occurs when an antibody called immunoglobulin A (IgA) builds up in the kidneys, causing inflammation that can lead to kidney scarring and eventually kidney failure. For many, IgAN remains undetected for years due to its subtle early symptoms—making awareness and education critical.

Thanks to scientific progress and the dedication of the kidney disease community, new FDA-approved treatment options are now available that can help preserve kidney function and potentially slow disease progression.

Join Us: IgAN Awareness Day Town Hall – May 14 at 7pm ET

NephCure will host a free, virtual IgAN Awareness Day Town Hall on Wednesday, May 14 at 7:30 PM ET. This empowering event will include updates from medical experts, lived experiences from patients, and information on navigating treatment options. All are welcome to attend, click here to register.

NephCure extends heartfelt thanks to our generous IgAN Awareness Day sponsors, Novartis, Otsuka, Travere Therapeutics, Alexion, Calliditas Therapeutics, and Vertex Pharmaceuticals, for their continued partnership in raising awareness and supporting the IgAN community.

To learn more about IgAN Awareness Day, register for the Town Hall, or explore patient resources, visit NephCure.org/igan-awareness-day-2025

About NephCure:

NephCure’s mission is to empower people with rare, protein-spilling kidney diseases to take charge of their health while leading the revolution in research, new treatments, and care. Since 2000, NephCure has invested more than $40 million in kidney disease research and helped transform the treatment landscape through advocacy, education, and support. NephCure is a U.S. tax-exempt 501(c)(3) public charity.

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