RARE News

NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout

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29 September 2023

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CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

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28 September 2023

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Sickle Cell Disease Association of America holds national convention

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27 September 2023

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World Orphan Drug Congress Europe 2023

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27 September 2023

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Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

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26 September 2023

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Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

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22 September 2023

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CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

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21 September 2023

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EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases

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18 September 2023

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Uncommon knowledge

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13 September 2023

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W. David Arnold, MD joins CMT Research Foundation Advisory Board

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7 September 2023

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Sickle Cell Disease Association recognises Sickle Cell Awareness Month

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5 September 2023

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Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

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30 August 2023

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Million Dollar Bike Ride pilot grant program request for applications

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24 August 2023

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NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

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16 August 2023

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IGA issues position statement on non-comparable medicines

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15 August 2023

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Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

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14 August 2023

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Landmarks illuminate pink and purple for National Eosinophilic Week

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4 August 2023