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A day in the life
A day in the life
Drunk or disabled? – challenges with ataxia
By CONTRIBUTOR
16 September 2024
A day in the life
#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on
By CONTRIBUTOR
14 August 2024
A day in the life
If you’re not dancing, something is wrong…
By CONTRIBUTOR
1 May 2024
A day in the life
A day in the life: living with dyskeratosis congenita (DC)—Paula’s story
By CONTRIBUTOR
19 April 2024
A day in the life
A day in the life: living with Bardet-Biedl syndrome—Tessa’s story
By CONTRIBUTOR
16 February 2024
A day in the life
Don’t let your condition define you! David’s journey with stiff person syndrome
By CONTRIBUTOR
14 February 2024
A day in the life
A day in the life: a medically complex condition that is as unpredictable as the weather
By CONTRIBUTOR
29 November 2023
A day in the life
A day in the life: navigating our way through the labyrinth of a newly discovered disease
By CONTRIBUTOR
9 October 2023
A day in the life
A day in the life: a glimpse into my life living with scleroderma
By CONTRIBUTOR
15 September 2023
A day in the life
A day in the life: graduation day for Raymond Huml’s son, Jon
By CONTRIBUTOR
25 July 2023
A day in the life
A day in the life: Josiah’s diagnosis with familial cold autoinflammatory syndrome
By CONTRIBUTOR
28 June 2023
A day in the life
A day in the life: Cathy Moughton, PSPA helpline care navigator
By CONTRIBUTOR
24 May 2023
A day in the life
A day in the life with hypokalemic periodic paralysis: Ralph Berthiaume
By CONTRIBUTOR
1 May 2023
A day in the life
A day in the life with Behcet’s disease: Pamela Price
By CONTRIBUTOR
29 March 2023
A day in the life
My year at RARE Youth Revolution
By CONTRIBUTOR
26 January 2022
A day in the life
Realising our workplace vision
By CONTRIBUTOR
6 October 2021
A day in the life
RARE Employment Q&A with Police Inspector David Singleton
By CONTRIBUTOR
6 October 2021
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