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Rare Disease Day 2024: Sheela Upadhyaya previews some of the events taking place across the world
14 February 2024
The UK Rare Diseases Framework: Sheela Upadhyaya reflects on recent progress across the UK
12 February 2024
UK report calls for more government input to make cell and gene therapies a true health system priority
9 January 2024
Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem
11 October 2023
Living well with a rare disease: are we really supporting our community to achieve this?
25 September 2023
The ABPI Code Partnership events: a step towards better partnerships?
12 July 2023
COVID: Three years on—what has changed?
3 May 2023
The new world of gene therapy: five questions answered
8 March 2023
Red tape is ruining the potential of partnerships between patient groups and the pharmaceutical industry – it’s time for change
1 March 2023
Finding investment for gene therapies
22 February 2023
“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?
1 February 2023
Living with Gaucher disease: challenging encounters along the patient journey
17 February 2022
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