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Author:
CONTRIBUTOR
Patient voice
Find the power in you
By CONTRIBUTOR
4 September 2024
Charity & advocacy
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
By CONTRIBUTOR
31 August 2024
Industry Insights
How ‘do’ we versus how ‘should’ we think about disease awareness activities?
By CONTRIBUTOR
30 August 2024
Patient voice
Rare cancers: Sarcoma and your mental health
By CONTRIBUTOR
28 August 2024
Turning the tide for rare disease
Rare Patient Voice: Helping patients and caregivers share their voices
By CONTRIBUTOR
28 August 2024
Patient voice
Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease
By CONTRIBUTOR
21 August 2024
Patient voice
Looking for the positives during hard times: visual snow syndrome
By CONTRIBUTOR
21 August 2024
A day in the life
#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on
By CONTRIBUTOR
14 August 2024
Letters
A troubling development in access to treatment for people living with primary biliary cholangitis (PBC)
By CONTRIBUTOR
7 August 2024
Industry Insights
Cell and gene therapies: Where are we now?
By CONTRIBUTOR
31 July 2024
Letters
Sarcoma Awareness Month: Sarcomas demand urgent awareness and education to prevent poor outcomes
By CONTRIBUTOR
24 July 2024
Turning the tide for rare disease
I am Celine Dion: The stiff person syndrome community reacts to the release of Dion’s documentary
By CONTRIBUTOR
22 July 2024
Industry Insights
Early access to medicines: A picture is worth a thousand words
By CONTRIBUTOR
17 July 2024
Charity & advocacy
Bridging gaps in care: How independent charitable patient assistance organisations support underserved populations
By CONTRIBUTOR
10 July 2024
Industry Insights
What can rare disease services learn from oncology services? A personal reflection
By CONTRIBUTOR
1 July 2024
Letters
“Glass siblings”: an unnecessary label
By CONTRIBUTOR
24 June 2024
Turning the tide for rare disease
The UK General Election 2024: Ensuring rare diseases remain a priority
By CONTRIBUTOR
24 June 2024
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