RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

Patient voice

Understanding palliative care

By CONTRIBUTOR

9 October 2024

Patient voice

What is pain?

By CONTRIBUTOR

9 October 2024

Charity & advocacy

Join the movement: championing care for rare musculoskeletal conditions

By CONTRIBUTOR

9 October 2024

Medical

Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder

By CONTRIBUTOR

2 October 2024

Industry Insights

Putting patients first?

By CONTRIBUTOR

2 October 2024

Reviews

RARE Reels review: Knox Goes Away

By CONTRIBUTOR

30 September 2024

Patient voice

My unending search for a diagnosis?

By CONTRIBUTOR

25 September 2024

Science & tech

Improved patient finding strategies for rare diseases – a win-win for patients and drug developers

By CONTRIBUTOR

25 September 2024

Charity & advocacy

Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits

By CONTRIBUTOR

18 September 2024

A day in the life

Drunk or disabled? – challenges with ataxia

By CONTRIBUTOR

16 September 2024

Sunday sessions

How reiki, spirituality and faith help me accept life with a rare disease

By CONTRIBUTOR

15 September 2024

Letters

The math is anything but encouraging

By CONTRIBUTOR

12 September 2024

Charity & advocacy

Alex TLC Monthly Research Summaries

By CONTRIBUTOR

12 September 2024

Industry Insights

NICE’s key developments in 2024 in summary

By CONTRIBUTOR

11 September 2024

Charity & advocacy

Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead

By CONTRIBUTOR

10 September 2024

Turning the tide for rare disease

Sickle cell disease: The urgent need for better care, increased research funding and better treatment options

By CONTRIBUTOR

8 September 2024