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Turning the tide for rare disease

Turning the tide for rare disease

Alpha-1: best practices for testing for this and other late-onset genetic diseases

By CONTRIBUTOR
30 August 2023

RARE News

Million Dollar Bike Ride pilot grant program request for applications

By admin
24 August 2023

Turning the tide for rare disease

Life in the slow lane: finding strength after ataxia diagnosis

By CONTRIBUTOR
23 August 2023

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

By admin
16 August 2023

Science & tech

Marie Curie: the inspiring legacy of a great woman of science and our RARE inspiration

By CONTRIBUTOR
16 August 2023

RARE News

IGA issues position statement on non-comparable medicines

By admin
15 August 2023

RARE News

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

By admin
14 August 2023

RARE Ramblings

Richard’s RARE Ramblings: accommodating for rare conditions

By CONTRIBUTOR
9 August 2023

RARE News

Landmarks illuminate pink and purple for National Eosinophilic Week

By admin
4 August 2023

Charity & advocacy

Creld1 Warriors—bringing the scientific and parent community together

By CONTRIBUTOR
2 August 2023

A day in the life

A day in the life: graduation day for Raymond Huml’s son, Jon

By CONTRIBUTOR
25 July 2023

RARE News

Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit

By admin
19 July 2023

Charity & advocacy

Connie Montgomery’s late diagnosis with two rare diseases: factor VII deficiency and pemphigus vulgaris

By CONTRIBUTOR
19 July 2023

RARE News

RARE Health Equity Forum seeks to put ideas into action

By admin
12 July 2023

Industry Insights

The ABPI Code Partnership events: a step towards better partnerships?

By CONTRIBUTOR
12 July 2023

RARE News

Rare disease patient advocates gather in San Diego for a week of events to connect, learn, and empower

By admin
7 July 2023

Science & tech

LifeArc announces investment of more than £100 million into rare disease research by 2030

By CONTRIBUTOR
6 July 2023
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