RARE News

RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

By admin

17 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

By admin

10 March 2022

Charity & advocacy

The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments

By CONTRIBUTOR

10 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

By admin

3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

By admin

2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

By admin

28 February 2022

RARE News

Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community

By admin

15 February 2022

RARE News

The Neuromuscular Disease Foundation Takes the Lead

By admin

4 February 2022

RARE News

The urgent case for patient assistance funding

By admin

3 February 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

By admin

20 January 2022

RARE News

RARE Revolution promotions announcement

By admin

7 January 2022

RARE News

Rare disease clinic for Poland Syndrome

By admin

21 December 2021

RARE News

Foundation of the RE(ACT) Discovery Institute

By admin

14 December 2021

RARE News

Sickle Cell Disease Association of America names Regina Hartfield CEO

By admin

10 December 2021

RARE News

Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.

By admin

9 November 2021

RARE News

What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma

By admin

30 October 2021

RARE News

Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting

By admin

26 October 2021

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